On ME/CFS and Fibromyalgia Awareness Day: Hold On

On ME/CFS and Fibromyalgia Awareness Day: Hold On

After eight years experiencing Chronic Fatigue, I am so pumped that today is international ME/CFS and Fibromyalgia Awareness Day. The people who endure such pain yet choose to persevere are true warriors. Thankyou to the incredible family, friends and practitioners who supported me during those long years. When I gave up hope, you held onto it for me. For that I am truly grateful.

For a long time I thought life could only be about survival, but I am learning it is so much more than that. Today I celebrate over a year of complete healing of CFS, the incurable disease with no known cause. I never thought I would live free from it here on earth but so many of you did, and in that LA carpark God listened and responded to your faith even when I lacked it so. He is truly marvelous and loving, ever present in the darkness and the light.

Everyday now I wake up and marvel that I can get up out of bed, that I can walk and run. I marvel that I can concentrate and that I can live without constant pain and weariness. Through the years healing came, through prayers, through pills and through counselling, but it was never sure. I was always afraid of relapse, of how triggering events would impact me. Now, I am free from this terrible illness. God is stronger and his love is greater than circumstance; I am learning that in every situation, every triumph and every loss.

If I could say one thing to those fighters who continue to battle everyday, it would be something so simple, yet so very complicated at times. That is: hold on. Hold on because I know you can. I know you can because each morning when you choose to wake up you prove that you are a victor. Every time you urge yourself to roll out of bed you are proving to yourself that you are brave. And in the dark nights when you can’t sleep and terrible thoughts might plague your mind, you choose hope. My friend- for I call you friend because we have fought together, you are a revolutionary. Every day you defeat the odds and grace the world with the gift of your presence.

Thankyou for choosing hope. Thankyou for persevering. Jesus, thankyou for healing not only my body, but my heart. You are a God of restoration.